I guess if I am going to blog a bit then it might be nice to say a bit about me...
I am 37, live in middle class suburbia in a town in New Zealand. I have been married to Benjamin since I was second year at University. We have four amazing children, K is 11, L is 9, O is 7 this month and N turns 5 this month too.
I have a degree in Social Science and a Graduate diploma in teaching. I am an at home mum which is awesome and means I can take my kids to all their after school sports (artistic roller skating and soccer).
I have battled depression since I was 17, and get very frustrated with my mental health being used as an excuse for my current health situation.
I like sewing, reading, riding my bike (when I have the balance), and dabbling in politics when the mood suits me.
D
Saturday, 1 November 2014
beginnings
My journey of not knowing began in May 2013, it started with a headache that was the worst I had ever experienced. I had just turned 36, had four children who were under 10 and a husband working full time. We didn't need what ever this was happening.
That intense headache caused neck pain too, so I headed to our local hospital as I didn't know what was wrong, in the initial 24 I developed weakness on my right side so was kept in hospital for a week fortests etc.
My MRI came back with some t2 hypo-intensities and they did a lumbar puncture to test for MS.... over 12 months later I still do not know what is wrong but I do now that whatever it is its not good.
I have tried many medications for my constant headaches, by July this year I gave up on them, which helped, this week though the daily constant headache came back. I also still get weakness or heaviness on my right side, this increases when the headaches increase.
My basic symptoms are headaches, sometimes constant for over a month at a time, weakness or heaviness on my right side that makes walking and carrying things quite difficult, tingling sensations in my left foot and my right side, fatigue and some forgetfulness. I also seem to need to go to the bathroom alot.
I have been seen by a neurologist at our hospital who suggests this is all functional or conversion disorder, a psychiatrist who disagrees and a private consultant who thinks this lays somewhere between MS and migraines. my general practitioner has become very use to seeing me and he thinks this could be MS too.
so my journey of not knowing continues.
That intense headache caused neck pain too, so I headed to our local hospital as I didn't know what was wrong, in the initial 24 I developed weakness on my right side so was kept in hospital for a week fortests etc.
My MRI came back with some t2 hypo-intensities and they did a lumbar puncture to test for MS.... over 12 months later I still do not know what is wrong but I do now that whatever it is its not good.
I have tried many medications for my constant headaches, by July this year I gave up on them, which helped, this week though the daily constant headache came back. I also still get weakness or heaviness on my right side, this increases when the headaches increase.
My basic symptoms are headaches, sometimes constant for over a month at a time, weakness or heaviness on my right side that makes walking and carrying things quite difficult, tingling sensations in my left foot and my right side, fatigue and some forgetfulness. I also seem to need to go to the bathroom alot.
I have been seen by a neurologist at our hospital who suggests this is all functional or conversion disorder, a psychiatrist who disagrees and a private consultant who thinks this lays somewhere between MS and migraines. my general practitioner has become very use to seeing me and he thinks this could be MS too.
so my journey of not knowing continues.
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